This blog has been set up to give readers an opportunity to understand what it is like being diagnosed and living with MND from my own personal experience. To read the whole story, you need to go to the 'Blog Archive' below right, start with 'What is MND? and why a Blog?' and read forward to the present day. Pass on the link to anyone you think may be interested. If you want to email me or leave a comment, please do so. Also, add your email address to the email updates box below to keep updated.
A photo of me at home
Thursday, 8 May 2014
An article in The Herald written by Gordon
I am not sure this will work, as the blog site seems reluctant to allow files to be added to a blog, but here goes. If you click on the link below, a 'popup' should display, saying go to link. Click on this and it should take you to the document. If it does not work, please email me and I can send on the pdf file.
Gordon's Article in The Herald
Friday, 2 May 2014
Life with MND - March 2014
Although
spasticity has progressively crept on and created all sorts of concerns it’s
amazing how quick my year is flying in. On 24th I heard my first blackbird
at 0500hrs proudly pronouncing, I suspect, it’s nesting area in our garden.
My
mind, I feel is slowly accepting the dire changes that there’s been since the
being of the year - it certainly helps in coming to terms with my sense of
frustration. What’s also a huge bonus is other than a slight discomfort in bed - to
date I’ve no pain, mind I still do supple exercise, and feel that’s been the saviour
in keeping me free from skin sores in bed or chair.
MND progressively destroys motor neuron
messages between the brain and muscles, slowly weakening them to the point of
uselessness - this has been my journey with motor neuron - a slow grinding down
process. With MND, certainly in my case, one never gets back functions when lost
and of course there is no cure for this ‘hellish’ disease.
So it is hard to believe that in 2oo2, I was
very active and involved in running my one man business of ‘jobbing gardening’. It
was my intention then to reduce my workload to about 4/5hrs for 5days a week until I
was 70. And now, for the remainder of life I will be totally reliant on others,
even for the most trivial, basic and personal needs.
To
let reader’s understand, no way I’m feeling sorry for myself, but for the
tremendous care and constant dedication of Jean 24/7, she keeps
me in a state of life that is still worth living!! Carers, although very efficient,
impact little on the overall time Jean puts in.
Relinquishing my lifetime style of a
‘control freak’ has been so hard for both of us - but I’d say to Jean - I’m
slowly accepting the situation, as the effort now involved is just to great to
fight it.
Jean
has always managed to put me to bed and get me up on her own, but on the 6th,
for safety reasons, we decided to get a carer into assist her to get me up at
0700hrs. She still manages with putting me to bed though.
Subscribe to:
Posts (Atom)