Continuing
my March remarks on Jean’s 24/7 care we had a meeting on the 2nd
with the council’s community carer and the care teams organiser regarding more care
time for Jean, as my condition progressively gets worse. As the year moves on I now see the importance
of support for Jean to have regular respite and ‘backup’ to my now constant needs
as MND disablement is now focusing on care - I’ll keep readers posted on the outcome
of our meeting!!
To move this forward we have, on two occasions, taken in a paid carer so Jean could have up to three hour breaks to relax and do her own thing.
To move this forward we have, on two occasions, taken in a paid carer so Jean could have up to three hour breaks to relax and do her own thing.
5/6th
I call days when I go into a zombie mode and doze frequently, my MND days - thankfully
these days don’t happen often!!
Wheelchair
team visit to fit moveable body supports on the chair to try and stop my tendency of leaning to the right - certainly when fitted it keeps me more upright.
On
27th and after two aborted attempts, my article in 'The Herald'
newspaper was published - fair chuffed with the result!!
The
weather being favourable on the 28th it was decided to try getting
into the car. Bearing in mind the ongoing deterioration of right arm and hand
which controls the manipulation of the chair, and the fact that I haven’t been in
the car this year, the outcome was - I managed fine!
With the relatively mild winter trees are
breaking into leaf - for someone that’s been involved in horticulture for 50
years it’s a good feeling that the universe is still consistent and reliable
regarding the seasons. Spring has always been my favourite!
The
new life of leaves bursting forth in lovely fresh shades of green, before
pollution dulls them down. Also the
uncertain season ahead when trees are susceptible to climatic conditions and disease - I suppose on
hindsight similar to us humans.
As
a point of interest, I remember reading whilst studying for a horticultural diploma that a fully grown mature
oak tree needed to draw up through its roots 200 gallons of water daily to avoid drought
conditions - some feat for the mighty oak - aye nature is wonderful!
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