On
the first we got first ‘double up’ in mornings with council carers relieving
Jean of the commitment - again a welcome break for Jean.
We had a visit from the Dietician - nothing new
to report other than the fact, I always look forward to and thoroughly enjoy
breakfast and lunch. However, this month found the usual tea time meal was
causing reflux throughout the evenings, so I’ve had to switch to lighter meals, like poached egg on toast, or one of my favourites, porridge made with oat meal -
seems to have solved the problem meantime.
On
the eighth we again had weigh in at Forres hospital – really surprised when
nurse said 68k, considering when last weighed on May 13th I was 63kg. To
put on 5kg’s with continual ongoing muscle wastage and no obvious signs of where my body has put
it on - a surprise.
Had
Wilma, the self-employed carer, in for a week of continuous attention whilst
Jean had her respite break at our time share in Aviemore. Glad to say, no
mishaps during the week and a relaxing time for Jean and I - totally at ease with
Wilma, who over the year has became accustomed to my ways and needs.
Although,
MND is a truly ‘hellish disease with no known cure’ - oddly enough, for me, it
has an ‘up side’ in that, it has opened my mind to a totally different set of
thoughts, and priorities, which has made for a more understanding and tolerant
individual seeing myself, in this alien world, heading I suspect, for total reliance
on others as the disabilities trundles ever on.
It’s
so hard to get my head round why my hands, which have served me faithfully for
over 70 years and have always responded to my thoughts and needs, won’t work now -
without any signs of deformities and
normal sensations to the tip of the finger.
Finally,
in this installment of my story it would be remiss of me not to mention the
referendum (for Scottish independence), so after some serious consideration and listening to views and
reading reviews, I’ll just say I ended up voting with my heart and not my head. But I will die content that I put a cross in the right place for me.
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