On the 6th we had a visit from the
Occupational therapist to fit a new neck collar – although when demonstrated a
good few months earlier it seemed to have lots of good merit, but now feel my
rate of deterioration has progressed so much it is not beneficial now.
On the same day we also had the speech therapist
accompanied by a lady with a scanning eye contact for use with the Lightwriter. However she found it difficult to line up the screen for me because of my
constant lean to the right, plus my neck with its distinct resting on my right
shoulder added to the problem.
On 11th/12th the speech therapist visits
to practice scanning- she was also finding it difficult to line up the screen. Then, through a joint agreement by both, we decided
stop it due no real improvement.
On watching 'Children in need' on TV, it brought home to
me that that at least I’d had a good fulfilling life, whilst many of the
children featured had no chance of a normal life. It was so humbling to think
I’d nothing to complain about.
The 16th brought a dark time in the evening
with a constant runny nose turning to dark brown colour and followed by a very
restless night in bed.
On the 17th called in GP who put me on a 10 day course
of anti- biotic. Also on same day we had a visit from wheelchair care to fit
floating arm.
The 26th was a horrible evening of a runny nose and
general overall weakness; Jean had great problems getting me into bed.
On the 27th GP put me on further course of antibiotics.
Overall a pretty horrible month.
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