A photo of me at home

A photo of me at home
A new photo of me and Jean at home

Thursday, 22 October 2015

Life with MND - October 2015 - 9



Grinding of teeth and swallowing
This is a recent change where, if swallowing saliva or food it rolls around the mouth before the brain actually conveys the message of movement to  swallow. Then before swallow I grind my teeth so hard I’m in fear of chipping them. I feel it’s just another adjustment I’ve to solve in ongoing problems related to MND.

O n the 6th  October  - I got the results of bloods taken regarding my cholesterol level it was 4.5 - very satisfactory. I got community nurse on a ‘home visit’ to take my BP, it was 138 over 80, again for my age - fine! One must remember that since my weeks stay in hospital in March this year I was taken off all cholesterol and HBP medication.

On 10th October - suddenly overnight I lost the ability to operate the computer, because of a non-functional right shoulder which severely restricts the use of the mouse on the specially adapted keyboard screen. As this is now my only way of communication - in that, about a month ago I found it very difficult to use the ‘Lightwriter’ (which turns the typed word into speech). However with daily persistence and a stubborn nature on the 13th I was able to get the shoulder reasonably supple so I’m ‘back in business’ with my typing. 
It was such a shock to lose my only source of conversing with Jean regarding my daily requests/remarks etc and of course my blog. Like all professional chefs on TV they are often heard to say ‘this is one I prepared earlier’ so like the chefs, I intend to write my final farewell blog to Allison, our daughter, to post on when I’m no longer able to type.

Daily tiredness because of MND - It is most noticeable now as MND trundles on, I definitely get more tired as the day  goes on - so any lengthy and concentrated typing, such as my blog, has to be done in the morning. 

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