A photo of me at home

A photo of me at home
A new photo of me and Jean at home

Monday, 18 January 2016

Life with MND November/early December - 2015 - 12



As I compose this instalment it’s now in the early days of December
Jean got an explanation for her diarrhoea it’s called Campylobacter (it’s the most common type of food poisoning and is mainly associated with the person having been in contact with poultry or having handled raw chicken pieces). The Doctor said no medication, but allowed to run its course.
It’s been a traumatic time over 3 weeks for Jean with severe discomfort, lack of energy, this debilitating illness on top of her ongoing related problems. It is now the 7th December and Jean is improving.
Review of past year
Checking up on diary since January 2015 I’ve lost many, many functions this year - virtually all about the loss of my trusty right shoulder and hand.
It’s been by far my worst year since diagnosed in 2005 of frustration, agitation, mind panic, and negative thoughts.
This year has been very challenging, a long haul and I feel its time to sign out from composing my blog and conserve and concentrate my remaining capabilities in communication with Jean and the family.
I haven’t said to Allison, our daughter, but hopefully in her regular visits she will write a paragraph or two on how I’m getting on to  Carol for inserting in the blog to let my regular readers know how I’m coping with this ‘hellish disease’.
As I’ve said in the past I have no fear of death, but the length of time my particular type is going is very trying now.
I suspect, because of regular exercise I’ve been relatively pain free, other than by evenings after 13hrs in the wheelchair my bottom can get sore as this part of my body is a fixture when seated. 
Health wise I’ve had no complaints since inflicted with MND, maybe I’m really in for the ‘long haul’ - I hope not’! But what will be will be.

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