Living with MND - 2004

Another year - for you readers to catch up with

 

As I said earlier, I am posting on behalf of my Uncle, and these are the historical notes made on his condition and how it impacted him and his family and friends. As you can see, the disease moved slowly, little of note to report in detail, but as always, he recorded his thoughts at the end of each report.

January—As a member of a concert party we were entertaining at a belated Christmas party, which involved the meal. Well, the menu was traditional turkey and trimmings etc. all lovely set out, but for me the whole meal was so bland. Since then and for at least the remainder of the year I experienced a hot sensitive tongue, and at times my mouth seemed to be full of cheek, plus a craving for hot spicy food: a yearning I had never experienced in my lifetime.

For the remaining months of the year—There were many days when my balance was very poor.

September—On a brisk walk of half a mile a very noticeable limp developed in my left leg, and the left foot would begin to slap down.

 

My Thoughts

At this stage of my illness, and contradictory to the Doctor’s assumption that I had a slight stroke my “gut feeling” was it was something more sinister.

MND was first mentioned by our son, who at his work had a client whose mother had symptoms very similar to what I was experiencing and she had MND. I new this disease was fatal with no cure, but quickly put it out of my mind as I’d never known anyone with it.

At the end of the day, on many occasions the more physical tasks in my daily list were not being ticked off, because just too weak to execute them.