Catheter fitted last day of October, removed 1st November due to severe pain whilst passing urine. The nurse came to the conclusion it may be spasms caused by the MND, but needs further investigation.
4th
had ‘home visit’ from physiotherapist mainly regarding weakening neck muscles.
5th
visit from Occupational therapist, and technician both affiliated to wheelchair
care with a new chair previously measured up and adapted to my changing body
form and posture.
Having
thought long and hard about the new chair prior to its delivery I emailed the O
T- here is a condensed version.
As
MND reaches a critical stage, for me
quality of life and getting the best out of every day and retaining the last
semblance of independence is my ultimate aim, and if I find the new chair
restricts me in any of the above then I will keep my ‘old faithful’ electric
chair.
The
new chair arrived, but I found the (strongly advised request in the home) to
use the footrests and shoulder restraints to help keep my head up, deprived me
of so many pleasurable daily pursuits that I’ve opted to keep my original
chair. However, wheelchair care from Inverness
– bless them! Who always have my interests and welfare to the fore, have said
it may be possible to put a taller back which can recline onto my old chair. This would open up a world again in that, getting eye to eye contact and
watching TV .
I’m
not concerned about the fitting of the PEG (mentioned in previous posts), but being hospitalised and
communication in an alien environment with what I’m sure is a very busy staff is a concern. But, as
always, forward thinking kicked in and I prepared an informative sheet for
hospital staff of key words and signs. Here's hoping....
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