Life with MND - November 2013 - 8th to 17th

11^th-the wheelchair technician came to uplift the modified chair and left my old one.

12^th Well, today’s the day for me to be hospitalised; we opted to use our own car to get there, although NHS said they could arrange transport.

13^th was the appointed day to fitting the PEG- (described in September)-the procedure went well, with no complications that I was informed of.

Luckily, I was in a room with only two other patients and no real restrictions on visiting times, so Jean was able to come in between 08-30 and 0900hrs to wash, dress, feed, and take care of my daily needs then left at 2000hrs- nurses were very caring, and attentive, but with a demanding work load at times trying to get my message across was too time consuming for them.

On the Thursday night the nurses decided to put me into bed at 19:30hrs - well that was the start of a very restless 15hrs in bed. Plus for about 10 of these hours I had to get the nurses to turn me from right side onto my back and vice versa every hour because of  spasms in my right hip. Bearing in mind whilst in bed I always feel at my most isolated and vulnerable. By 0800hrs the following morning I had allowed the past night to ‘fester in the mind’ and had worked myself into a state of agitation - it was then I decided I was going home that day even if I’d to sign myself out.

When the Doctor did his rounds Jean told him I was going home. He said he was happy with the PEG, so I came home on Friday the 15^th.

On conclusion, whilst in hospital it certainly made me appreciate Jean’s care and attention, and the benefits of the adaptations in our home to help me achieve a still acceptable lifestyle.