Jean
and I, appear to have accepted the PEG with no problems. Jean, getting used to the
sequence of ensuring tube is closed between syringes and me with no side effects.
We started the procedure-under instruction, with flushing water through the PEG
and have now graduated to200ml of a nutrient feed, plus flushing with 600ml of
water daily. The dietician said ideally, she would like to a build up to 2000ml
per day, but 1500ml acceptable. So, to date, with my drinks of
water, honey and lemon through mouth and the PEG we have reached 1300ml. With Jean feeding me
all three main meals daily, I feel I’ve reached a good balanced diet and upped
my fluid to a satisfactory level. In fact, If truth be told, I’m enjoying meals
more now than in the past three or four years. I really feel it’s because now
I’m totally relaxed while being spoon fed!
My
old and trusted electric wheelchair over the past 7 years has now been fitted
with a reclining back-rest. This means I can tilt back the chair and once again
get eye to eye contact with family and friends, and as we are having all the
family on Christmas day it’ll be nice to be involved again and not, as in the
past, I always felt a bit isolated.
Another
nice experience to end the month I’ve been contacted by the Herald newspaper to
compose a 600 word article on ‘living with MND’. This initially materialised
because of my blog - it's certainly a flattering ego booster for me.
The
Herald correspondent asked if she would compose the article from information on
the blog or if I wanted to do it. As mentioned in my personality description, I
always like a challenge so without hesitation said I’d attempt it. I will be
keeping you informed of how I get on!
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