Living with MND - 2015 - 6

Am I becoming a recluse?

It’s just I haven’t been outside this year. OK, the weather hasn’t always been conducive for me, as like lots of reptiles I need warmer temperatures before I venture outside - otherwise I just stiffen up and can’t move. Plus, now the hand that operates the motorised chair no longer has the finer motor skills to manipulate or operate the ‘joystick’ that takes me up the rather steep ramp into our adapted deck - mind, I could always get a battery winch fitted.

If the truth be known, I’ve no inclination for going out - whether it’s the body slowly shutting down, I don't know, but I just feel the effort and bother is not worth it.

Procedure for getting me into bed 

This precise and detailed procedure is so important. First, with very restricted movement for the 10 hrs spent in bed it’s certainly in my interests to get as happy and reasonably comfortable as possible before the carers leave. Plus, if I’m comfortable it lessens the chance of having to call the carer on duty during the night. If I don’t call them they will usually pay a voluntary visit during the night, just to check that I’m OK.

But time is changing things - a phrase I’m sure will be used often in the future! In July was a month where I’d no need to call the carer, whereas by mid-August I’d developed a gnawing core pain in my left ankle and knee joints. Exercising in bed certainly helps relieve the pain and I’ve started taking 2 ibuprofen tablets before bed which seems to have solved the problem meantime.

The Blog 

It’s amazing the capabilities of the computer and internet. On the 25/8/15, our page viewings were 3,596,  but more to the point this number includes world wide coverage including the following countries - 

United Kingdom -1806 views

United States - 892 views

France - 217

Russia - 193

Ukraine - 98

Australia - 48

Germany - 38

Canada - 31

Netherlands - 18

Romania - 17

A big thank you to my niece Carol who ‘setup’ the blog – without her help and enthusiasm it wouldn’t have happened.

World finance regarding China

As August draws to an end, the finances of the world is in turmoil, all because China has taken a rapid downturn in it’s sudden growth over the past 2 years. This leads me on to a story of some 30/40 years ago I must have read it, or heard it somewhere - that the world is like baking in an oven where countries become the items in the oven. The European nations were too white and under cooked - all the darker skinned nations were over cooked as they were too dark - whilst the Chinese were cooked to perfection by their skin colour and would ultimately rule the world. 

So in some ways it’s come to fruition - we’ll watch with interest for future developments. 

Note from Carol - I am happy to contribute what I can to this blog - but a big thanks needs to go to all our readers -- please do try and tell your friends and family about this blog - the more readers the better - I am quite sure we would all love for the blog to continue for as long as possible, so keep reading.