A photo of me at home

A photo of me at home
A new photo of me and Jean at home

Friday, 6 September 2013

Life with MND - 2010 - Part 3

Another update from Gordon about 2010 and life with MND
 
In my notes to date I’ve only mentioned Jean briefly—my carer. I’d say, it’s been harder for Jean to “get her head round” my illness than it’s been for me. Having our minds set on “winding down” to our retirement with a wee bit of money put aside for “rainy days” (an expression used to cope moneywise with the unforeseen items) and the occasional holiday etc.: we thought ourselves very lucky.

But as previously quoted “what’s in front of you won’t go past you”.

I suppose 2006 was the worst for both Jean and I with losing both speech and mobility virtually at the same time.

Lack of mobility I found frustrating, but manageable, loss of speech however, was very difficult in the early stages as I was still trying to come to terms with my lack of communication.  This lead to the occasional “tiff”. My means of disapproval with Jean at this time was eye contact — (I’m sure Jean would say my eyes conveyed in some instance much more than ever words could say).

My present quality of life however, would fall far short if it were not for Jean’s support and unfailing attention when needed. Although still fanatically independent at this time, there are procedures that I cannot do and that’s where Jean steps in to help.

In the past three years Jean has not “had her sorrows to seek regarding her health” whilst on the other hand my last appointment with my GP with a medical complaint was March 2007. Since then it’s been on a “feel fine basis” and annual pill review with bloods taken to confirm that prescribed medication is having no ill effects.

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