January
Sleep pattern has slowly
improved in that I now get up to an hour of undisturbed sleep without having to
turn because of pain in hips. For the past three years I’ve religiously
massaged hips every second night with “glucosamine gel” . Whether it has helped — I
don’t know, but it is a discipline I’ve opted to do.
June
I’ve been lucky, in that,
the past three years body strength and deterioration has been slow. Now
however, progressive paralysis in shoulders, upper arms, hands, and feet whilst
turning: say, from car to chair, is most noticeable in that there are instances
when my feet feel like they are “welded to the ground”.
Also
I’ve found it difficult with regards my hands. What has
served me faithfully for the past 72 years, now, though absolutely no
distortion or pain, constantly let me down on the finer motor skills.
December
The deterioration has
served up many additional problems, but through time I’ve improvised, and
adapted to retain my past level of independence. – Mind, I think the innovative
ways, and adaptations are drawing to a close as MND bites deeper.
The
beginning of a year is traditionally when folks see it as an opportunity for
lifestyle changes via New Year resolutions.
Mine would be to try and retain my present level of independence in the
coming year.
One
of the very few conditions that seem to have improved is that, through
experimentation I’ve been off my prescribed nasal spray to help my breathing
for three months: I found my inhaling was acceptable, but my exhaling was very
shallow. “Diaphragmatic Breathing” (like opera singers would practice) I feel
helped me.
I’ve
change my exercise schedule in that I now start with shoulder, abdominal, and
pelvic in bed, and then go on throughout the day in short five to ten minute
periods. It’s no use just executing the exercises automatically, and remotely:
I feel one has to really focus on the muscles being worked, and having
completed it: hold for a short period, before relaxing. I now mainly do
exercises to try and keep the body reasonably supple.— but only of course if
MND allows!!
I’m
a strong believer, to achieve a satisfying and good life there has to be self control.
No comments:
Post a Comment