A photo of me at home

A photo of me at home
A new photo of me and Jean at home

Saturday 11 January 2014

Life with MND - December 2013

December--the continual weakening of shoulder and arm muscles has now reached the stage that if the arms leave the support of the body they just drop down.

Informative literature states MND does not affect the brain, so
I thought this would be a good time to relate how my mind is coping with this ‘hellish disease’ as it reaches a serious debilitating stage. 
 
Well being a very realistic individual I’m surprised at how I’ve accepted my present condition, bearing in mind my belief in euthanasia and opting for  DNR (do not resuscitate). Whether my fatalistic and contentment  attitude (described below) has anything to do with it,I  don’t know, but  I’ve still a great interest in what tomorrow may bring.

First, I’m a fatalist (what’s in front of you will not go past you) having said that, I take the ‘life changing’ scenarios, mull them over- pick out what may be most beneficial to the family, then ask Jean what she thinks of my thoughts. Although by this time I’m pretty convinced I’ve decided the way to go. The next important thing is contentment, for me it’s a feeling of inner satisfaction accrued over a lifetime of being happy with ‘our lot.’

To finalise 2013 we had a lovely Christmas period with the 25th ‘rounding it off’ when all the family and their partners visited, although we only had 8 for the meal, which by the way was scrumptious. I had a 3 course meal with Allison, our daughter giving her Mum a break from feeding me. It’s a long time since I ate so much at one sitting and thoroughly enjoyed it. Oh! And not forgetting my two Speyside malts with a touch of water, brought to life in a crystal glass and rolled around the mouth so not to catch my breath. Rolling round the mouth to saviour the taste makes me feel just like a real connoisseur.  The only downside to drinking now, is I’ve got to use a straw.  And to get the final dregs from my malts I need someone to hold and tilt the glass and ideally hold the straw, but hey!  I’ll persevere, for as long as possible.
 
I do hope all my readers had a great Christmas too, and of course here's wishing you all a very Happy New Year.

Tuesday 7 January 2014

A photo or two of the man himself

 
This is a photo of Gordon taken at his 70th birthday party
 
The one below is a lovely one of Gordon and Jean, taken recently.