Now written by Gordie's daughter, Alison.
Sadly
the time has come where Gordie (Dad) is no longer able to type up his thoughts
for his Blog. Movement in his right hand is minimal and it takes a huge amount
of effort to type a few words now. Dad has resigned himself to keeping what
strength he has for typing to communicate with Mum and the surrounding Care Team.
Through
my phone calls with Mum and overnight visit every 2-3 weeks I’d like to keep
the Blog going for Dad. Checking the Blog hits always gave him such a buzz and
he always felt that if writing down his experience with MND was ever a help or comfort
to a sufferer or carer then it was a job worth doing.
Week
commencing 15.02.16 - Dad had a new catheter fitted it’s the first time that he
has reached a scheduled replacement as previously they have had to be replaced
due to them bypassing. In an effort to try and avoid the bypassing and the
inconvenience it caused to the health visitors and Marie Curie nurses (if it
happened during the evening) the routine Jean has adopted of flushing the
catheter on shower days has removed the problem of the catheter bypassing and
the need to have it changed so often.
Emergency
respite care - there has been a meeting to discuss emergency temporary care if
anything were to happen to Mum. This time last year Mum was admitted to
hospital as an emergency and it highlighted an issue as far as Dads immediate
care was concerned. My brother Ross was working in an area that had no mobile
service. I live in Aberdeen a 2hr drive away and it was a scramble phoning around
the few people that are in a position to provide care for Dad. We have to
remember that just because Dad can no longer communicate doesn't mean he's
challenged mentally - anyone popping in might think he's just sitting in his
chair all day but in actual fact all his requirements although not onerous are
very specific and need to be carried out in a certain way that is tried and
tested and has been adapted and tweaked to accommodate the progression of his disability.
The Respite home in Forres called Tigh Varis provides a one on one service and
it is hoped that Dad's case will be reviewed and an overnight stay will be
organised which will be tailored to his requirements. Just as a wee trial.
Excessive
fluids - 19.02.16 Mum has applied a patch no bigger than a plaster to Dad to
see if it helps reduce the egress of fluid from his mouth and nose. Some days
fluids come out as quickly as they are being administered and it can be a full
time job wiping his nose and mouth and not ideal for Dad. So hopefully these
patches will help stem the flow and provide him some respite.
