New Picture

Gordon wanted a new picture of him on his blog - hence the change. The old picture is now at the bottom of the blog and was taken, I think, in 2013.

Life with MND - November 2015 - 11

Swallowing

Things have moved on fast regarding the restriction on what I can now swallow without being blitzed into a smooth paste with a liberal amount of natural yogurt, or if salad, then mayonnaise.

Breakfast is by far the meal that goes down well with a substantial plate of porridge made in the Scottish traditional manner. Then at around 1000hrs I’ve banana; slivers of a chocolate flake; a touch of muesli; and stewed apples - this also goes down well.

However when it comes to lunch it gets a wee bit hit or miss whether I’m ‘up for it or not’ - fortunately most days I’ve got cereal/yogurt, salad/mayonnaise, or home made soup for a main course and if I’m ‘up for’ a pudding then it’s usually a milk based one, and that’s my last meal of the day. I take extra supplements of fortified nutrients through PEG by syringe to compensate for the missing of a 1700hrs meal.

It’s difficult to get head around

How from tips of fingers to the points of my toes I’ve still got sensitive feelings to touch, and with no signs of deformities and yet they are so useless. The legs, forearms, and shoulders are a shadow of what they once were with the now lack of muscle content. But for parts of the body that served me faithfully for some 66 years without any mayor problems, and bearing in mind about 40 of those years, they have been involved in hard manual work.

Jean’s diarrhoea and sickness since Friday the 14^th

 It’s now at the end of the month, the sickness was quickly stopped by an injection, but on the first night she was sick 4 times that I heard and to hear her wretch was horrible for me not being able to put a comforting and sympathetic arm round her shoulder to show she was not alone in her trauma.

She has ulcerative colitis on top of the diarrhoea, and at the end of the month still not regulated.

Plus having diabetes controlling her blood sugar can be difficult when ill.