A photo of me at home

A photo of me at home
A new photo of me and Jean at home

Thursday 19 February 2015

Life with MND - December 2014



1st took collection of a new air ripple mattress – a strange feeling – not happy with it, but decided to try it for the next week – and by the end of the seven days I was getting an average of five hours sound sleep per night.

On the 11th Ross, our son, took us up to wheelchair care in Inverness to see a specialist rep, who dealt in a specific neck brace that may help keep my head upright – it went well and so one was ordered.
12th had a home visit from our Dentist for  a check up – my tilting chair worked very well to allow him to examine my teeth – no need for further work needed at this time.
15/17th self employed-carer in for sleepovers, so Jean can have 2 nights  a week undisturbed sleep, although since catheter fitted there is little need now for getting anyone up. 
On 18th Jean had to phone the 24hr care Doctor, I had problems in passing urine
Doctor decided to get nurse to fit catheter, - and 2300hrs it was fitted – it was great relief since last time I had managed to empty bladder had been early morning.
Christmas is a lovely time to meet up with all the family and indulge in lovely food.
This year has been a time of comprise and change in the early months, but towards the end it’s really been a time when I’ve had to rely on others for the simplest of tasks.
Very reluctantly this may well be the end of my blog as right hand and arm deteriorates to the extent that this page has taken over a week to type up.