July
I no longer try to hold a
audience with my Lightwriter—it just takes to much effort now as a core
tiredness creeps over the arms and body. Whilst in the past I always felt if I
was “bright and breezy” any people visiting left in a similar way.
By
an evening, I can now get exhausted and this can be seen on occasions when it
appears lips weaken and I tend to dribble from mouth, thankfully this condition
never occurs in bed.
My
electric chair is now fitted with new arm rests, the left one is channelled to
retain arm from slipping off (I can now brush hair again instead of asking
Jean) also fitted was a head restraint when in the new car.
The
higher “grab rails” on the new bed has thrown up a few problems (so what’s new)
but are essential to allow the upper section of bed to raise me into a
virtually upright position so Jean is then able to get me into a sitting
position on the edge of the bed. The
main problem was solved satisfactorily by the use of a bungee cord secured to
the duvet at the base of the back “grab rail.”
August
We had inaugural meeting
with Crossroads Carer Organisation regarding Jean’s pending four nights in
September at our timeshare in Aviemore. At this meeting I gave her information
of my needs.
As
I gain confidence on entering, and exiting our car it’s opened up a new world
ending the mundane, and predictable weeks of the past four months. To the
extent that we attended the initial support meeting in Inverness with MND Scotland
for patients and their carers, interesting to say the least!
The
ongoing irritation of occasional runny nose whilst at meals is still
persisting.
September
Weight still stable at
11stone. Well it’s time for Jean’s wee break. Ithink I’ve thought of
everything in anticipation, but Allison
coming up just in case!!
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