May
As standing on scales now
becomes difficult I’ve decided to weight myself only once a month. At ‘weigh in’
I was11 stone (70kg.) I’ve been approximately that weight since diagnosed in 2005, so that’s
good.
Another dramatic change took place on the 12th
from always managing to seat myself on the toilet unaided to needing assistance
from Jean and the rota-turner. Whilst
sacrificing my independence it’s quick, safe and a successful way too get
seated. Having said that, now if Jean’s not around I can’t go! This state of
affairs is just another diminishing acknowledgment on the road I have to travel as
a MND sufferer.
Being
a creature of habit and as disability moves on, I find any change to my daily routine can now very easily turn
into a crisis, and if I allow it to ‘fester in the mind’, it can end up a real
drama.
To
end this page on a brighter note. The hoist has been in place for about a year
parked in the bathroom. It’s a constant
threat, and reminder but I’ve never needed it to date, other than an initial
trial run: “when trussed up and suspended I had an image of a Christmas turkey
ready for the oven”. So glad and relieved I’ve still got the strength in shoulders
and arms to still pull myself up whilst using the rota-turner.
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