A New format -
I’m now including thoughts in the months
January
Well, little did I think
I‘d see 2013 when diagnosed in2005.
Again, my aim this year is to retain any level of independence for as
long as possible.
Reputable
information from internet states that “motor neuron control voluntary muscles
that control speech, walking, breathing, and swallowing: typically the disease
is fatal within 2/5 years with around 50% dying within14 months of diagnosis:
1in 5may survive for 5 years and 1 in 10 for 10 years.
Mortality
normally results when control of the diaphragm is impaired and the ability to
breathing is lost. In past and now, my respiratory I’d say is fairly good, so what
the future holds this year is the varied and unknown journey experienced by each
and every MND patient.
Jean
arranged a “home visit” from Doctor on the 3rd as I’d caught a cold. I was put
on a week’s course of anti-biotic. Sleeping well, and within week pretty well
back to normal.
Jeans
last break was in September last year, so she intends going through to Allison,
our daughters for a three day break. Jean as always, had prepared all meals, and
Ross was covering sleepovers and my daytime care needs, so everything was in
place. With no mishaps over Jean’s three day break it was deemed a success,
other than perhaps communication which Ross and I treated with a touch of
humour.
But it often crosses my mind what would happen if I ever was
hospitalized!
Attended
support MND meeting in Inverness - always
interesting outing meeting fellow sufferers.
District
nurses made a home visit to take blood pressure, and bloods — with no recall I
assume both ok.
Overall
I’ve had a quite acceptable month.
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