On the 3rd, an engineer and
Occupation Therapist both involved with Wheelchair Care made a ‘home visit’ and
measured me up for a new chair to help posture.
On
4th with great reluctance, but further weakening of arms mean I am unable now to
support my electric razor and I’ve had to ask morning care team to shave me. Shaving and cleaning teeth have always felt very personal to me, but one gone
and feel cleaning teeth will not be far behind.
On
the fifth, Jean had both big toe nails completely removed, because of ingrown
nails. The mind shudders at the very thought of it! The removal went as planned,
then it involves months of bathing in hot salt water and changing dressings, and
on the Saturday she was at our timeshare in Aviemore for a week’s respite.
As
a core tiredness creeps over the body the effort for typing procedures was
lacking. Luckily I had the foresight of forward planning and had the procedures all
printed out, just as well as I’d two new carers during the week, plus our Allison,
our daughter, who did one night’s sleepover. With Ross, who lives locally
tending my needs during the rest of the week, including sleepovers.
On the 26th, L eon our great
grandchild had his first birthday and I took a severe deterioration in my MND
condition. Could it be life for one just beginning , whilst another was on the way out, I’d like to think so
anyway!
To
end the month, Jean phoned Doctor. On3oth and requested that I was ready for a
P E G to be fitted (Percutaneous endoscopic gastrostomy) instead of taking in
liquid and food through the mouth it’s a device fitted into the abdominal wall
to get special food supplement into the system. This is in preparation when not
able for any reason to take food or fluid in through the mouth.
This
month’s notes may seem terse, but the effort and focus needed now to compose my
notes creates a sense of urgency.
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